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AMANDA H. FUNDRAISER :

Racing For A Cure

My Message
I was officially diagnosed with Rheumatoid Arthritis in March of 2015 after an almost 2 year struggle for an official diagnosis by doctors. I was told more than once by a Rheumatologist that I was referred to by my old Primary Care Physician that all of my problems were in my head & that I needed a Psychologist instead of a Rheumatologist, even with lab work all pointing to RA. I finally found a new amazing group of Rheumatologists with the help of a new Primary Care Physician who immediately gave me the diagnosis that I knew in my heart was coming, that I so dreaded to hear but that I had also prayed for simply so that I could finally begin some type of treatment before my body was in complete shambles. Subsequently, I was diagnosed with Sjogren's Syndrome in September of 2015. Because of the delay in treatment by all of the initial doctors I saw, the havoc wreaked on my body cannot be undone. To "outsiders" (what I call those people who do not suffer or those that do not or have not spent almost 24/7 with a loved one that suffers from the hell caused by RA/Sjogren's or other autoimmune diseases) there are so many misconceptions, lack of comprehension, misperceptions, fallacies, misunderstanding, etc. with Rheumatoid Arthritis/Sjogren's & sadly, at the same time, an equal amount of individuals who are either uneducated or just simply do not care to become educated. To actually realize, understand, know, & comprehend that this is not "your grandmother's arthritis". People like me cannot simply take an aspirin or a Celebrex & feel better. Many days I feel alone, almost like I am trapped inside a glass box, crying, begging, pleading intensely for help, compassion, & understanding. But yet even though they can see me through this glass box, no one can hear my screams. I will say that I am blessed with a husband (of almost 13 years) who after my diagnosis when he finally understood that my illness was not as simple as just arthritis & that I was not going to be cured, has read, studied, researched, etc. in an attempt to at least "educationally" understand what is happening inside my body, even if he does not "physically" understand it. He is also an unbelievable father to our wonderful, smart, & amazing 5 year old son & does as much as he can every single day to make my life easier in any way he can. So, with all that said & a little history behind my dreams & daily prayers for a cure, I'll end with the beautiful words of Rachel Platten from a song that I heard for the first time at a time when I needed to hear it the most (roughly 3 weeks after my official diagnosis) & have since adopted it as my own personal "theme song"... This is my fight song. Take back my life song. Prove I'm alright song. My power's turned on. Starting right now I'll be strong. I'll play my fight song. And I don't really care if nobody else believes. Cause I've still got a lot of fight left in me.
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THE TEAM : $9644.23 TOTAL RAISED SO FAR